STATE PLANNING MATERIALS

State Action Plans in States Outside of California

Connecticut State Action Plan Developed 2009

planning guide 2009

State Planning Materials

All materials are organized by
most recent date below

California Sickle Cell Disease State Action Planning Committee In Person Meeting Sacramento, CA Jan 27th 2018

  • Meeting Agenda
January27Agenda 0122 3

California Sickle Cell Disease State Action Planning Committee In Person Meeting Sacramento, CA Jan 27th 2018

  • Presentation #1, Presented by Mary Brown, President of the Sickle Cell Disease Foundation of California

Please click on the image to download the PDF of the document.

1 PatientFamilyVoice PDF 2

California Sickle Cell Disease State Action Planning Committee In Person Meeting Sacramento, CA Jan 27th 2018

  • Presentation #2, Presented by Marsha Treadwell, PhD an overview of the Ca State Action Planning Work

Please click on the image to download the PDF of the document.

2 CAPlanningInitiative PDF 3

California Sickle Cell Disease State Action Planning Committee In Person Meeting Sacramento, CA Jan 27th 2018

  • Presentation #3, Presented by Susan Paulukonis, Principle Investigator with the California Rare Disease Surveillance Network
  • An overview of past SCD action plans formed by other states

Please click on the image to download the PDF of the document.

3 StateActionPlans PDF 4

California Sickle Cell Disease State Action Planning Committee In Person Meeting Sacramento, CA Jan 27th 2018

  • Presentation #4, Presented by Judith Baker DrPH, UCLA
  • road-mapping the policy work for the  CA State Action Planning Work

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4 Roadmap for key health policy change CA Cowger and Baker PDF 5

California Sickle Cell Disease State Action Planning Committee In Person Meeting Sacramento, CA Jan 27th 2018

  • Presentation #5, Presented by Dr. Keith Quirolo, former UCSF Benioff Children’s Hospital Oakland Sickle Cell Clinician
  • A review of past and present legislative efforts for SCD

Please click on the image to download the PDF of the document.

5 LegislativeEfforts Quirolo PDF 6

California Sickle Cell Disease State Action Planning Committee In Person Meeting Sacramento, CA Jan 27th 2018

  • Presentation #6, Presented by Susan Paulukonis, Principle Investigator with the California Rare Disease Surveillance Network
  • An overview of the SCD Disease Surveilance Data

Please click on the image to download the PDF of the document.

6 SCDC PDF 7

California Sickle Cell Disease State Action Planning Committee In Person Meeting Sacramento, CA Jan 27th 2018

  • Presentation #7, Presented by Dr.’s Marsha Treadwell and Elliot Vichinsky
  • An overview of the Sickle Cell Care Coordination Initiative

Please click on the image to download the PDF of the document.

7 SCCCI PDF 8

California Sickle Cell Disease State Action Planning Committee In Person Meeting Sacramento, CA Jan 27th 2018

  • Presentation #8, Presented by Dr. Elliot Vichinsky
  • An overview of Sickle Cell Trait with history and current review

Please click on the image to download the PDF of the document.

8 Sickle Cell Trait Vichinsky PDF 9

California Sickle Cell Disease State Action Planning Committee In Person Meeting Sacramento, CA Jan 27th 2018

  • Presentation #9, Presented by Marlene Espinosa, MPH
  • An overview of the California Newborn Screening Program

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9 CA NBS Program PSCRC Presentation Espinoza PDF 10

California Sickle Cell Disease State Action Planning Committee In Person Meeting Sacramento, CA Jan 27th 2018

  • Presentation #10, Presented by Dr. Susan Claster
  • An overview of the New Martin Luther King Jr. Sickle Cell Clinic, located Los Angeles, CA

Please click on the image to download the PDF of the document.

10 MLKClinic Claster PDF 11

California Sickle Cell Disease State Action Planning Committee In Person Meeting Sacramento, CA Jan 27th 2018

  • Presentation #11, Presented by Mary Brown, President of the Sickle Cell Disease Association of California
  • An overview of the SCDFC, training for Community Health Workers

Please click on the image to download the PDF of the document.

11 MLKCHWs Brown PDF 12

California Sickle Cell Disease State Action Planning Committee In Person Meeting Sacramento, CA Jan 27th 2018

  • Presentation #12, Presented by Mary Brown, President of the Sickle Cell Disease Foundation of Califoria
  • An overview of the Community Health Workers in General

Please click on the image to download the PDF of the document.

12 CHWs Brown PDF 13

California Sickle Cell Disease State Action Planning Committee In Person Meeting Sacramento, CA Jan 27th 2018

  • Presentation #13, Presented by Dr. Judith Baker
  • An overview of the Potential Partnerships within the state of California for SCD

Please click on the image to download the PDF of the document.

13 Partnerships SC CA Action Plan Baker PDF 14

California Sickle Cell Disease State Action Planning Committee In Person Meeting Sacramento, CA Jan 27th 2018

  • Presentation #14, Presented by Dr. Marsha Treadwell
  • An overview for the Sickle Cell Disease Training

Please click on the image to download the PDF of the document.

14 Sickle Cell Disease Training Center PDF 15