Sickle Cell Equity
California

Vision Statement

Sickle Cell Equity California
#SaveSickleCellLives

Mission Statement

Our Mission is to build an effective statewide coalition of clinicians, community, and stakeholders to educate, equip, and empower Californians about Sickle Cell Disease, Sickle Cell Trait, and other blood disorders.

Community Workgroup

Our group focuses on increasing opportunities for community-based and advocacy stakeholders in California to identify and prioritize public health activities related to SCD and outreach, education, advocacy and community needs. This work is being done in collaboration with the creation and implementation of the CA State Action Plan; to share, coordinate, and collaborate on ongoing activities.

Policy Workgroup

Our group focuses on identifying and promoting the implementation of federal and state policies that should be pursued that could improve: 1) early identification and follow up of Californians with sickle cell disease and sickle cell trait, and 2) health care delivery for Californians with SCD. Policy areas include those that promote building workforce, improving reimbursement, enhancing surveillance, strengthening sickle cell as a priority within existing state and federal programs and promoting standards for expert Sickle Cell Centers.

Clinical Workgroup

The Clinical Needs Workgroup is a collaboration among healthcare providers and SCD advocates with the aim of identifying feasible solutions to the medical needs of those living with this disease. Access to care, workforce development, provider training, clinical treatment, and outside factors impacting care (such as transportation and housing needs) are all addressed as critical needs in this group.