Individuals with sickle cell disease, family members, experts, community-based organizations, advocates, and other partners met in Sacramento, CA in early 2018 to begin the detailed process of creating the California Sickle Cell State Action Plan. We identified public health priorities and key implementation agencies needed to improve the health of Californians affected by sickle cell disease and sickle cell trait. We envision the Action Plan to be a roadmap that will transform healthcare delivery, access to and cost effectiveness of care for Californians with sickle cell.
Our goal is for providers, agencies and the community to collaboratively implement the plan, which will articulate needed steps to ensure that individuals with sickle cell disease receive comprehensive, patient-centered, coordinated, accessible, safe and high-quality care, no matter where they live or seek care in California.